Publicação
Patient Experience in Home Respiratory Therapies: Where We Are and Where to Go
| Resumo: | The increasing number of patients receiving home respiratory therapy (HRT) is imposing a major impact on routine clinical care and healthcare system sustainability. The current challenge is to continue to guarantee access to HRT while maintaining the quality of care. The patient experience is a cornerstone of high-quality healthcare and an emergent area of clinical research. This review approaches the assessment of the patient experience in the context of HRT while highlighting the European contribution to this body of knowledge. This review demonstrates that research in this area is still limited, with no example of a prescription model that incorporates the patient experience as an outcome and no specific patient-reported experience measures (PREMs) available. This work also shows that Europe is leading the research on HRT provision. The development of a specific PREM and the integration of PREMs into the assessment of prescription models should be clinical research priorities in the next several years. |
|---|---|
| Autores principais: | Caneiras, C |
| Outros Autores: | Jácome, C; Mayoralas-Alises, S; Ramon Calvo, JA; Almeida Fonseca, J; Escarrabill, J; Winck, JC |
| Assunto: | Serviços Hospitalares de Assistência Domiciliar Oxigenoterapia Oxygen Inhalation Therapy Home Care Services, Hospital-Based |
| Ano: | 2019 |
| País: | Portugal |
| Tipo de documento: | artigo |
| Tipo de acesso: | acesso aberto |
| Instituição associada: | CUF |
| Idioma: | inglês |
| Origem: | Saúde - CUF |
| _version_ | 1876680994624372736 |
|---|---|
| author | Caneiras, C |
| author2 | Jácome, C Mayoralas-Alises, S Ramon Calvo, JA Almeida Fonseca, J Escarrabill, J Winck, JC |
| author2_role | author author author author author author |
| author_facet | Caneiras, C Jácome, C Mayoralas-Alises, S Ramon Calvo, JA Almeida Fonseca, J Escarrabill, J Winck, JC |
| author_role | author |
| contributor_name_str_mv | Repositório Comum |
| country_str | PT |
| creators_json_txt | [{\"Person.name\":\"Caneiras, C\"},{\"Person.name\":\"Jácome, C\"},{\"Person.name\":\"Mayoralas-Alises, S\"},{\"Person.name\":\"Ramon Calvo, JA\"},{\"Person.name\":\"Almeida Fonseca, J\"},{\"Person.name\":\"Escarrabill, J\"},{\"Person.name\":\"Winck, JC\"}] |
| datacite.contributors.contributor.contributorName.fl_str_mv | Repositório Comum |
| datacite.creators.creator.creatorName.fl_str_mv | Caneiras, C Jácome, C Mayoralas-Alises, S Ramon Calvo, JA Almeida Fonseca, J Escarrabill, J Winck, JC |
| datacite.date.Accepted.fl_str_mv | 2019-04-24T00:00:00Z |
| datacite.date.available.fl_str_mv | 2019-05-06T20:24:56Z |
| datacite.date.embargoed.fl_str_mv | 2019-05-06T20:24:56Z |
| datacite.rights.fl_str_mv | http://purl.org/coar/access_right/c_abf2 |
| datacite.subjects.subject.fl_str_mv | Serviços Hospitalares de Assistência Domiciliar Oxigenoterapia Oxygen Inhalation Therapy Home Care Services, Hospital-Based |
| datacite.titles.title.fl_str_mv | Patient Experience in Home Respiratory Therapies: Where We Are and Where to Go |
| dc.contributor.none.fl_str_mv | Repositório Comum |
| dc.creator.none.fl_str_mv | Caneiras, C Jácome, C Mayoralas-Alises, S Ramon Calvo, JA Almeida Fonseca, J Escarrabill, J Winck, JC |
| dc.date.Accepted.fl_str_mv | 2019-04-24T00:00:00Z |
| dc.date.available.fl_str_mv | 2019-05-06T20:24:56Z |
| dc.date.embargoed.fl_str_mv | 2019-05-06T20:24:56Z |
| dc.format.none.fl_str_mv | application/pdf |
| dc.identifier.none.fl_str_mv | http://hdl.handle.net/10400.26/28428 |
| dc.language.none.fl_str_mv | eng |
| dc.rights.none.fl_str_mv | http://purl.org/coar/access_right/c_abf2 |
| dc.subject.none.fl_str_mv | Serviços Hospitalares de Assistência Domiciliar Oxigenoterapia Oxygen Inhalation Therapy Home Care Services, Hospital-Based |
| dc.title.fl_str_mv | Patient Experience in Home Respiratory Therapies: Where We Are and Where to Go |
| dc.type.none.fl_str_mv | http://purl.org/coar/resource_type/c_6501 |
| description | The increasing number of patients receiving home respiratory therapy (HRT) is imposing a major impact on routine clinical care and healthcare system sustainability. The current challenge is to continue to guarantee access to HRT while maintaining the quality of care. The patient experience is a cornerstone of high-quality healthcare and an emergent area of clinical research. This review approaches the assessment of the patient experience in the context of HRT while highlighting the European contribution to this body of knowledge. This review demonstrates that research in this area is still limited, with no example of a prescription model that incorporates the patient experience as an outcome and no specific patient-reported experience measures (PREMs) available. This work also shows that Europe is leading the research on HRT provision. The development of a specific PREM and the integration of PREMs into the assessment of prescription models should be clinical research priorities in the next several years. |
| dirty | 0 |
| eu_rights_str_mv | openAccess |
| format | article |
| fulltext.url.fl_str_mv | https://comum.rcaap.pt/bitstreams/9e0d9f91-3431-4952-b930-8dfcaa96f40d/download |
| id | cuf_e8ea70bd06118f18f337e408a237534f |
| identifier.url.fl_str_mv | http://hdl.handle.net/10400.26/28428 |
| inst_facet_str | urn:organizationAcronym:cuf{{{_:::_}}}CUF |
| instacron_str | cuf |
| institution | CUF |
| instname_str | CUF |
| language | eng |
| network_acronym_str | cuf |
| network_name_str | Saúde - CUF |
| oai_identifier_str | oai:comum.rcaap.pt:10400.26/28428 |
| organization_str_mv | urn:organizationAcronym:cuf |
| person_str_mv | Caneiras, C Jácome, C Mayoralas-Alises, S Ramon Calvo, JA Almeida Fonseca, J Escarrabill, J Winck, JC |
| publishDate | 2019 |
| repo_facet_str | urn:repositoryAcronym:cuf{{{_:::_}}}Saúde - CUF |
| reponame_str | Saúde - CUF |
| repository_id_str | urn:repositoryAcronym:cuf |
| service_str_mv | urn:repositoryAcronym:cuf |
| spelling | engpt_PTThe increasing number of patients receiving home respiratory therapy (HRT) is imposing a major impact on routine clinical care and healthcare system sustainability. The current challenge is to continue to guarantee access to HRT while maintaining the quality of care. The patient experience is a cornerstone of high-quality healthcare and an emergent area of clinical research. This review approaches the assessment of the patient experience in the context of HRT while highlighting the European contribution to this body of knowledge. This review demonstrates that research in this area is still limited, with no example of a prescription model that incorporates the patient experience as an outcome and no specific patient-reported experience measures (PREMs) available. This work also shows that Europe is leading the research on HRT provision. The development of a specific PREM and the integration of PREMs into the assessment of prescription models should be clinical research priorities in the next several years.application/pdfpt_PTPatient Experience in Home Respiratory Therapies: Where We Are and Where to GoCaneiras, CJácome, CMayoralas-Alises, SRamon Calvo, JAAlmeida Fonseca, JEscarrabill, JWinck, JCHostingInstitutionOrganizationalRepositório Comume-mailmailto:comum@rcaap.ptcomum@rcaap.ptDOIIsPartOf10.3390/jcm80405552019-05-06T20:24:56Z2019-04-242019-04-24T00:00:00ZHandlehttp://hdl.handle.net/10400.26/28428http://purl.org/coar/access_right/c_abf2open accessServiços Hospitalares de Assistência DomiciliarOxigenoterapiaOxygen Inhalation TherapyHome Care Services, Hospital-Based279737 bytesliteraturehttp://purl.org/coar/resource_type/c_6501journal articlehttp://purl.org/coar/access_right/c_abf2application/pdffulltexthttps://comum.rcaap.pt/bitstreams/9e0d9f91-3431-4952-b930-8dfcaa96f40d/download84555 |
| spellingShingle | Patient Experience in Home Respiratory Therapies: Where We Are and Where to Go Caneiras, C Serviços Hospitalares de Assistência Domiciliar Oxigenoterapia Oxygen Inhalation Therapy Home Care Services, Hospital-Based |
| status | SINGLETON |
| subject.fl_str_mv | Serviços Hospitalares de Assistência Domiciliar Oxigenoterapia Oxygen Inhalation Therapy Home Care Services, Hospital-Based |
| title | Patient Experience in Home Respiratory Therapies: Where We Are and Where to Go |
| title_full | Patient Experience in Home Respiratory Therapies: Where We Are and Where to Go |
| title_fullStr | Patient Experience in Home Respiratory Therapies: Where We Are and Where to Go |
| title_full_unstemmed | Patient Experience in Home Respiratory Therapies: Where We Are and Where to Go |
| title_short | Patient Experience in Home Respiratory Therapies: Where We Are and Where to Go |
| title_sort | Patient Experience in Home Respiratory Therapies: Where We Are and Where to Go |
| topic | Serviços Hospitalares de Assistência Domiciliar Oxigenoterapia Oxygen Inhalation Therapy Home Care Services, Hospital-Based |
| topic_facet | Serviços Hospitalares de Assistência Domiciliar Oxigenoterapia Oxygen Inhalation Therapy Home Care Services, Hospital-Based |
| url | http://hdl.handle.net/10400.26/28428 |
| visible | 1 |
Atividades financiadas
Não foram encontrados projetos financiados.